General Chat

Hi Brian, My dad is 66 and has had it for around 10 years now. I live 70 miles away and only see them every couple of months. The past 2 years the disease has really taken a hold on him. He was a fit active man, a milkman for over 30 years. Did all his own decorating and gardening. Now he can barely walk, has to go upstairs on all fours and his speech is getting quite bad. I can hardly recognise the man he once was anymore. It has had a really bad effect on my mum. She has very high blood pressure and diabetes. She has been really down lately. I got back from a week away tonight and called her. She had been to the hospital today regarding a pain in her arm, she's had this for over 2 years and not pushed for anything to be investigated!! The doctor had her in for an hour giving her a thorough going over and she now has to go for a ct scan and other tests, mum thinks the word used was lymphoma, I hope to god she is wrong! Apparently it won't get any better and she will have to use painkillers for the pain. The doctor said her blood pressure was sky high and put her on another tablet, after she has that she has to lie still for an hour. total rest. I am really concerned for her. The doctor said she has to have the bp checked every day. When my sister took her round the doctors on the way back to sort that out, he said she didn't need that and offered to do it once a fortnight!!! After much arguing agreed to send a nurse round once a week. Is this what we are paying into the nhs for. We now have a battle on our hands to get the treatment she needs. She is only 65. I would really appreciate your prayers for my mum and dad too. Sorry Brian for being negative. Diane ps they also live near Romford in Chadwell Heath

Thank you for all your thoughts and prayers. Well, they came last night and she was as bad as I feared, but still thinking positively. Main problem now, apart from the very slow moving (much worse han my 83 year old mother in law) is the throat muscle problems that can lead to fluid going into the lungs rather than down the gullet. But keep those prayers coming.

Hello Brian - l am so sorry to hear about your friend. l did'nt really know much about Parkinson disease until reading this thread. A work colleague had it but it was at the very early stages, her main problem at that time was tiredness and being unsteady on her feet. My thoughts and prayers are with you all. Jude sarf wales

Sorry, missed this yesterday. So sorry to hear about your friend, a horrible thing to suffer from. I will pray for her, that she may find a drug to help her. I know they are making progress all the time, let's pray there is something to help heather and all the others on this thread, bless them. Ann Glos

Saw her again on Saturday (we see them about every 2 - 3 months) and she's still deteriorating. Noticeable change since the end of November. No more to say really, just needed to share my frustration at not being able to do anything to stop it.

My Prayers and thoughts are with you helenx

Hi Brian,Im really sorry to hear about your friend, life can be so cruel sometimes, it certainly puts things into perspective when you hear of these things. Roxanne x

So sorry Brian thoughts for all Take Care Germaine x

Not good news. Going down to see them again tomorrow. When I spoke to Rob last night it sounded as if she has deteriorated further, they have had to have a stair lift put in and are going to see a surgeon in July to see if an operation might help. I'm not sure if I would be able to put up with that kind of disability myself.

Prayers for Heather and husband Rob, and for all sufferers mentioned on this thread including Diane's mum and dad. As someone said earlier, lets all keep the prayers going up. God bless, Joy.

Positive thought prayers and hugs for both familys and there friendsVal

God Bless Heather. I will pray for her and Brian, tell her to keep her chin up. Deanna X

so sorry to hear about your friend. my very best wishes.

Thoughts and prayers for Heather.............Barbara,.........

Brian My heart goes out to Heather. My father had that terrible disease. The encouraging news is that they are making fantastic progress with the drugs and it can be well controlled now. I wish Heather well. Jean x.

Brian so sorry to hear about your friend Heather. These things are always so much harder to accept when it affects someone close. Love to you both. Lindaxx

Brian I am so sorry to hear about Heather, positive thoughts to Heather, Rob and you. Christine x

Hi Brian, Just seen this thread, again. My Mum and Dad moved into a flat last year as Dad was getting really bad. He started going to a care centre twice a week which gave Mum a little bit of respite. Now his eyesight has virtually gone and he can no longer walk. He is waiting to be assessed to get day care in a local hospice as they are geared up for his needs. As you say the deterioration is pretty unbearable. He hardly sleeps, cat naps here and there. That is the main thing, my mum can't ever get a decent nights sleep. She is exhausted with it all. They moved a bit nearer to us, still 35 miles, so I can only really get to see them ever 2/3 weeks. Sending positive thoughts for your friend too. I know only too well how this disease affects the whole family not just the sufferer. Dianex

Brian, so sorry to hear about your friend Heather. I shall be thinking of her and you. Daisy

Hugs and positive thoughts for your friend Heather. love Sue