General Chat

Claire, your son having a difficult time because of routine change, reminded me of when my boy first started school. He used to get so upset at school holiday time and I thought it was because he loved school. He used to cry and said he was going to unlock the gates and doors of the school and go to school. I finally figured out he was upset because his routine had changed and he felt he SHOULD be at school. He's got used to it all now. But, now and then, something different will happen and he'll get upset. If he knows beforehand, of a change to routine, he's usually ok.

Al

Claire,

I hope you get things sorted out with the wheelchair etc.

My boy is 12, so now we are looking at high schools. He has been in a mainstream school that has has a Special Ed Unit, but we think we will send him to our local Special School. He has Intellectual Impairment. The school says he is Autistic, but the Paediatrician is unsure, although she says he has a lot of autistic characteristics. All in all, he's not too bad. I really worry as he gets older with the puberty thing and inappropriate behaviour. Scary.

Hi Claire
Yes she knows that birthdays mean presents cards and cake lol She knows that she will be 13 and that it is her special day ! She has academically reached the age of 4/5, she also has Autisim and challenging behaviour and lots of sensory intergration needs. She is the same hight as me but bigger built and twice as strong, but I wouldnt change her for the world, but I wish I could change the world for her Her disabilities are a part of her and without them she would not be the girl she is today.

Alison try not to worry about the puperty bit, I know its different for girls but our DD is managing quite well so far. I also dreaded the transistion to upper school but with plaenty of planning and pictures she coped really well. She attend a SLD school which also takes children with complexed needs. Time goes so fast at the last meeting at her school they were telling me that next year we will have to look at what options she will take !!!!!

Claire have you looked at crelling harnesses ? We had to get a harness from them when DD kept taking her seat belf off, she got banned from school transport for weeks in the end I found a suitable harness and contacting the council as the Ot was useless.

Happy13th Birthday to Sharons daughter today.

Had a great night last night, I am chairman of the local Gateway Club.
It was our last night before we broke up for our summer break, so we had a summer ball it was in Tenby Rugby Club, we had a disco and a buffet which the rugby club kindly donated. I think we danced for the 3 hours (well my knee is telling me that today). Tenby is a great place to live as local buisness and the likes of the Rotary Club, the Lions, Round Table and many more all support us and give donations.

Hope everyone is well today.

From a shattered Lynne x

I am so glad you had a good night out, even if your knee(s) suffering now Lynne. Let's hope you have more good times like that so you can let your hair down a bit.

You all have my admiration wholeheartedly.

Lizxx

Oh what a morning I ve had.

Simon woke me up at 5am this morning with an asthma attack.
First thing give him his ventolin syrup (cant use a inhalour)
Wait to see if this works, nope.
Saturday Doctors shut so I cant get him on their nebulizer.
Ok down to the Cottage Hospital nearest main Hospital half an hour away.
They put him on the nebulizer within 10 minutes his breathing is normal he wont have any OBS done never has, so the nurse says he needs to see the Doctor to check him over but there isnt one here he needs to go to the other Cottage Hospital where there is a Doctor on call.
So 20 minutes later we arrive they have been informed to expect us.
One and a half hours later I started to get worried as Simon hadnt eaten and hes diabetic, I went and explained to the receptionest that we couldnt wait any longer as I didnt know what his sugar levels were doing he needed something to eat, I said that I knew his breathing was fine, and I would bring him back if anything changed.

The receptionest said he was sorry for the delay and he didnt know why the DOCTOR HADNT ARRIVED YET sorry I had to shout it as I didnt know he wasnt even in the building aaaaaaaaaarrrrrrrrrrrhhhhhhhh.

Right rant over Simons fine and thats the main thing.
Tenby is a lovley place to live and bring up children but you must never be ill LOL.

Lynne x

How worrying and frustrating for you Lynne, I would have been extremely vocal about my annoyance, I am afraid. That treatment isn't acceptable, when you were told the doctor was there.

Glad Simon is ok now, and hope things go more smoothly for you, at least for a while.

Lizxx