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I need your help.

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ProfilePosted byOptionsPost Date

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 10:51

Please do not read this if you are easily upset-that is not my intent.
As most of you know I lost my Son to SADS-and each morning I wake up (if I have slept) with a heavy heart. Unless this has happened to you it is hard to understand the raw agony it leaves you with-your life changes forever-I have a petition to ask the government to make these tests readily available for ALL our children, at the moment it is just those who could be a SADS candidate that get tested-and that takes forever as well-I know I can never ever bring my Stephen back, and I also know that I will have to live without him and feel the rawness in my heart every single day-but if I can prevent others from this devastation then at least Stephen will not have died in vain-he was just 34 with everything to live for-I want better for your children and I need all the help I can get, please sign my petition and ask your friends and family's to do the same-as but for the Grace of God go I. I will keep nudging my petition thread today-thank you.

Jude(sarf wales) 7602736

Jude(sarf wales) 7602736 Report 16 Nov 2007 10:55

Hi Gillian:o)))

As you know l have signed it, l'm with you all the way on this one. But please take care of you, or you won't be able to do anything!!!

jude sarf wales :o) xxxxxx

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 11:00

Yes Jude, thank you for signing-since I learnt that my sisters Son is a strong candidate for this it has me worried, I also have four other children and the tests they were given were basic-I do not want others to be overlooked-so thank you for your help. I hear what you are saying, but this is what keeps me going, I must make a difference.

Jude(sarf wales) 7602736

Jude(sarf wales) 7602736 Report 16 Nov 2007 11:05

l understand what you are saying Gillian!!


jude xx

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 12:13

This silent killer is claiming so many lives - and they pass by as silent as it happens - we need to be made aware of this and how to stop all these needless lossesXX.

Tina-Marie

Tina-Marie Report 16 Nov 2007 12:18

Thank you Jennifer, I am getting my family and friends to sign asap.

Tina x x x

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 14:10

Bless you Tina XX.

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 15:24

xx. please help xx.

MaggyfromWestYorkshire

MaggyfromWestYorkshire Report 16 Nov 2007 15:41

If you don't know what SADS is, or want some more information, listen to

http://www.bbc.co.uk/fivelive/programmes/fivelivereport.shtml

You will need to have Real Player installed on your computer and the report lasts about 25 minutes.

Please take the time to listen to it.

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 16:36

Thanks Maggy and nudging to save those children/young people. XX.

Deanna

Deanna Report 16 Nov 2007 16:41

I have signed it Gill.
good luck with it, and I can only imagine what you are feeling.
I never want to know... god bless.
Deanna X

Gillian Jennifer

Gillian Jennifer Report 16 Nov 2007 18:16

Thank you Deanna - Bless you - and I also hope you never have to walk in my footsteps, that is why I am desperately trying to make people aware and get the governement to help ALL our children, not just those at risk XX

Gillian Jennifer

Gillian Jennifer Report 17 Nov 2007 06:44

Good morning folks - I am off to work soon - take a look at the petition now 650 and hopefully still climbingXX Bless you all and thank you - between us we will make the difference.

Linda G

Linda G Report 17 Nov 2007 07:14

Hi Gillian,

Have signed and have sent emails to all my contacts asking them to sign as well.

This happened to a colleagues son many years ago. To say she was devastated is an understatement. He was 19.

Linda x






Staffs Col

Staffs Col Report 17 Nov 2007 07:45

I've already signed it but will ask my family and friends if they will as well Col x

Gillian Jennifer

Gillian Jennifer Report 17 Nov 2007 08:00

Morning - and thankyou Col and Linda G.

Millie

Millie Report 17 Nov 2007 11:08

HELP ! cant find the petition.

Just Jill x

Just Jill x Report 17 Nov 2007 11:24

Nor can I.

Staffs Col

Staffs Col Report 17 Nov 2007 13:59

I can find the petition and sign it but I am not getting e-mails to verify the signature. sounds like gremlins I will give it another bash later as both my parents and my OH want to add their names

Gillian Jennifer

Gillian Jennifer Report 17 Nov 2007 17:59

Thank you Colin XX.