General Chat

Yes Jean the invisible diability.

Oh has suffered from back pain sssssssfor over 50 yrs, after a bayonet went into his back and damaged the nerves. He is very good at managing it, but needs to sit in a high chair. Who has those nowadays, very few we find. I have a lot of pain and am good at managing with the help of co-codamol and determination. I have to walk with 2 sticks as my back will not support me far. I use a long handled brush and dustpan for small jobs, but have bent the brush all ways from using them to hold me up! But I look fine, and as said, no one believes that you have anything wrong.

I thought I would nudge this up for the people who are in pain. It dates back to 2007 but GR wont let me edit the title to say so - sorry.

I often wish I had a pain meter stuck on my forehead!

As well as not understanding pain - people dont understand the bouts of depression that come with most long-term illnesses.

Puss, I am so sorry to hear that, I am sure the pain must be excrutiating and I do admire you for mostly retaining your sense of humour and being able to rise above it. Back pain is horrid, I suffer very bad back pain and, so far, nobody has really given me a real reason for it. It can't be as bad as yours because I mostly manage without painkillers, just gritting my teeth, so when my back hurts I will think of you and know mine is not so bad really. Hope a sleep helps and you feel a bit better soon.

Ann
Glos

I am very very lucky in that I have always enjoyed good health, and I value it above all else (and I know that it is not guaranteed to last). My heart goes out to all of you who suffer chronic pain, I wish that you could all be free from it - and I will try to be more understanding of anyone in a similar situation (as you say, it isn't always obvious that someone suffers chronic pain).

Sheila x

im not looking for sympathy honest but i need to speak about it , as well as everything else i have wrong , just been told i have stenosis of the spine etc, and its one of the worst pains you can have, ( guessed that ) but wondered.
im totaly fed up and shocked at this lates news, as if the fm and arthritis wernt enuf to contend with, one conslolation at least they find causes for my pain, why me im only 40 but then again have had pain for most of life so nothing new i feel sick it took me ages to except the FM , well im off for a sleep i hope i bounce back to my jolly self when i wake , will have a little cry in my pillow lol. , glad i accepted the morphine now at least i can have a break now and again.

my heart goes out to those with chronic pain.

i broke my arm 2 weeks ago(,hence lower case, one hand typing)
the pain i was in was so great, i can just imagine what you are going through night and day.

at least i can see a light at the end of the tunnel,and the plaster on my arm is just a hindrance, i call it my albatross.

I thought I might send this up in the hope that it may help some more people.

Hoping all your pain is bearable today.

Ann
Glos

im finding something upsetting at the moment, as you know i have fm, and have just been diagnosed with arthritus of the spine and knees, waiting for results to confirm which type it is, but what is upestting me is 2 long term friends that i know i have been there for in the past, costing me time and money i didnt really have but loved them enough to do it seem to have walked away since the new diagnosis, whilst i dont make a point of talking about my pain when we are out pub etc, i do let them know about hosp and results so they are aware when we are out , im not able to geton the table and dance anymore or go raving at a club, but just prefer a drink and chat with friends which takes my mind of the pain when the medicinal booze kicks in on a friday, i use my stick constantly and if people ask what for i just say ive hurt myleg in a fall, rather than bring others down when we are out to have a break from our lives at home and work.
i agree with people pain is your pain, whilst we are all aware there is always someone else worse of, it dos'nt make your pain anymore easier, at the moment im content with my home life son has settled well into college which was my biggest worry and im lucky i have specky as a husband and friend who understands and we can enjoy each others componey as long as he aggrees with everything i say and do
this is a wonderfull thread and hope it helps you all xx

Julie, I am so glad your colleagues have finally realised what you have been fighting all this time, and will be a bit more sympathetic. Hope the docs can get the headaches sorted out.
Hugs for you,
Lizx

the problem is with pain - you feel like your either going on and on adn people dont wanta hear cos they cant do anything for you, when you just have to spit it out , thats all sometimes,
also you feel some dont believe you if they never heard of an illness, its not a well known name, they tend to be a bit dismissive,

only recently after suffering fro a long time from fibromyalgia when i had a serious bout of headpain,
OH came home from work and saw me sat on bath, head over sink, crying with cold flannel on my head,
i spend next three days in and out of bed, on settee, anywhere i could lie, third day after babbling speech, OH told me get dressed im taking you to hospital, they kept me in till headpain subsided,then sent me home, with promise to review my blood pressure,OH stayed home all week with me from work, my friends in work after speaking to him, finally realise i have pain, ping the light bulb went on, lol
i now await further checks to either confirm or unconfirm if it related to FM,blood pressure of sumut else, tho blood pressure is eratic
sorry im going on here,
thanks for reading
hugs to all :-)

Sorry I had to be off line, I would have kept this going. Did anyone mange to get hold of the Daily Mail with the full page spread on fibromyalgia? It was a very good article. You might still be able to find it on line.

Ann
Glos

Ann


It doesn't matter what the pain is caused by if you feel it its your pain ;;
I live in constant pain every day which can vary from mild to agonizing,,,even at this min its in fingers which I call my pathetic pain its there but not that bad ;;;just letting me know behave leave me alone ;;
but try and explain chronic pain to anyone and really you cant find the right words ;;;
I could say been there done that but like lot on here just shut up and keep taking the tablets;;
just don't ever be ashamed of your pain or feel guilty about it you didn't ask for it ;;; Wish I didn't have mine and wish I was still working but from going from someone who couldn't walk unaided or hold a cup to what I am now well what a improvement and there will always be someone worse than me ;;;;;;;;;;
Oh and love my spell checker as fingers dont do as asked ;;;


Babs

Hi there another message from our Ann - l have only just seen it on my mibile so sorry for it being late :o((

She says that there is a full page spread on fibromyalgia in the Daily Mail -( hope you can still get the paper).

jude sarf wales :o) x

Ann, I'm nudging this for anyone who did not see it last night.
It is such a helpful thread, and I wanted to say to you Ann;
Your pain is your pain, and since I can't feel it I don't know how bad it is.
BUT.... you can feel it, so never apologise to anyone, or think that their pain is much worse than yours.
No ones pain is worse than yours..... yours is the only pain YOU FEEL.
Look after yourself Ann. Deanna X

I am glad Ann sening her a ((((hug)))) and wishing her well.
Wendy.xxx

Wendy, that is encouraging for you, and for my sister. although she seems to have an understanding doctor.

ann
Glos

I know Ann he saw me stumbling and falling etc and in pain.
I feel for anyone but must say we have just got new doctors in our practise and they said they have information on FM etc now while they are training so fingers crossed.
Wendy.xxxxx

Hopefully nowadays all those who suffer from FM or ME will be properly diagnosed and not have to go through what you did Wendy. I still don't think the media have put right the wrongs done to people who suffered and were accused of imagining things. What a great OH you have to believe you all the time. so many people were not believed.

Ann
Glos