General Chat

Jen - Aspergers was top of my list of possibilities as well.

Dawn There is nothing I can help you with I'm afraid. I have never been in the situation you are in but I really feel for you. You have had some great advice with all these lovely people on this thread so Please do something about it soon. Your son deserves better from the System and Keep hounding the authorities until he gets some help. I wish you and your son well Kindest regards Jackie

Having had a step son with aspergers i too am thinking the same thing. Ask for help/advice/assesment/....ask again ...and again...and again even, if if gets him noticed and helped, he is entitled to that help. Health visitor a possibility? jess x

Hi Dawn Have sent you a pm Tilda X

This is so sad especially to think the School system is becoming so uncaring of the children. My daughter (now 28) when at primary school (1st school in her day) had trouble with her reading and writing...great imagination just couldn't put the words to paper. Her teacher asked for a meeting with me and asked if they could have her tested for dyslexia, I said anything that you can do to help.. the result came back that she had dyslexic traits and from thence foreward had special classes for reading and writing. The way her School did it was wonderful they were not looked upon as being dim but being lucky to have a special class where they were given prizes for good work. When she went on to Senior School her English teacher told me what wonderful stories she could write but because she spent so much time puzzling over words she lost her thread. She allowed my daughter to write it out her own way and then they went through it together, she was also allowed to use a computer to help with her course work! She is now a Manager of a fairly large child Day Nursery with complete responsibility of children ranging in age from almost new born to school age. Do as all these people have told you...they have given you good advice...I hope things work out for you and your son. Jacquie xxxx

HI Dawn Just stand your ground and keep asking for help Ask to be refered to a paeditrician by your GP Tell the school that you need to see the Ed Psych and dont be put off. Ask the school to let you see a community paeditrician if they refuse the Ed Psych. just keep badgering and badgering your son is worth it Lot of love and luck Linda P Ps please don't worry about lay diagnosises until you have had a specialist one

If you go to the adders website you can read up on all autistic spectrum - add/adhd/aspergers - Im sure you will receive so much support.

Get an office board and get him to write down things he wants to remember or even put 2 up one with days, months and numbers on it and everytime he goes past he will notice and it might help. Dawn you have to get up and be noticed don't sit back on this make waves till he gets help

Dawn, I agree with th other's who said sounds like Aspergers/ADHD/ Autism. I've 4 grandchildren from 2 families with Aspergers in varying degrees and your son sounds exactly like our 10 year old. You do need to get your son seen by a specialist so he can get all the help he needs. I hope you are in a good area as some areas are definately more helpful than others, but you do have to push push push even in a so called good area. Thankfully our daughters are now in a very good area in the North East and their children are getting the help they need with the 10 year old being given a place next year at a school that caters especially for Autistic Spectrum disorders. Good luck with your son and do look for a help group in your area as you will get loads of support from other mums.

Dawn, I would be back at the doctors and demand that he/she do something. It seems to me that your poor little lad has a problem, and no one seems interested enough to help him. Just don't you give up on him, you are all he has to fight for him. Lots of luck, and God Bless. Deanna (((((hugs)))))

UPDATE Have to ring doctors again tomorrow for appointment next week. In the meantime I am going to write down everything that he does and plonk that in front of the doctor that way I wont miss anything off and wont feel like a rambling crackpot. Decided I need to make my redhed and temper stand out more and stop just taking what they say for granted and not get fobbed off. That is going to be really hard as I will do anything to please others even if it means I miss out. Thank you for all your replies and when I have a few minutes to myself wiol check out the websites. Thanks again Dawn

Dawn As I am sure you are aware, a lot of people on this site are concerned for you and your son. When you go to the doctors next week remember that we all want to hear how you got on. I work with special needs children and the sooner they get the help they need, the better for everyone concerned. nell

Dawn, please use that email address i sent you. she will point you in the right direction. Shirley Ann.

Dawn - my heart goes out to you. We had problems (minor but traumatic at the time) with our son but he is now a 'sorted' young man of 28, so hang on in there! He had speech therapy, wore built up shoes to straighten feet, and his attention/concentration was finally helped by learning CHESS, much to my amazement. At 13 he was on the 'under 21' England Squad and remained there for 6 years until he went to Uni (to study I.T.) - if you had told me when he was five that this would be his forte I would have laughed... He has never dealt easily with his own age group (I wondered if it was because his parents were late thirties when we had him) and is now married to a girl 8 years older. Good luck, I know it's hard to watch them struggle... Heather - that was appalling what was being used as a solution, by the teacher! Poor lad. Lily

Hi Dawn. I have sent you an email. Jill x

Good girl Dawn. I always wrote things down for the doctor.(still do) Then I could cross each thing off as we dealt with it. Good luck with it. Deanna X

UPDATE Have taken hijm to doctors today and he hasn't been sent any reports from school or Speech Therapy. I now have to ask school to send him a report and the same for speech therapy and he will send letter to Education Physcologist to get him seen. This is what the Paediatric doctor suggested in Jan last year so as he has that letter he will do it once he has reports. More waiting around. When I get back from my physio appointment will ring specch therapy and ask and when they go back to school will ask them to do a report as well. Did help that I wrote everything down and he has kept my list for reference. Poor lad has virus as well. We all told him on Saturday (including my parents) that he had been on playstation too long as had a headache and felt sick. His temp went up and oon Sunday had a sore throat which he still has. Turns out its a virus but has made me watch how long is on his playstation as it is so attictive. Thank you for all your support Dawn

Hi there, I have been following your story and just wanted to say that as a Primary school teacher myself, I can sympathise with both you and the school involved. I know only too well how slow things are to get going from the initial assessments in school to the reports going from the SENCO to the relevant departments. Sometimes reports get 'lost' in the system,or take months and months to get seen. Children may well have moved class or school and the process starts all over again. I does sound as if your son has some of the symptoms of both ADHD and Aspergers. How come it has taken so long for someone to do something? These things are usually detectable around Nursery age. Best wishes and hope you get some joy soon. Jackie

Couldn't get hold of the speech therapist today so instead of waiting til tomorrow when I am in and out all day and will find it hard to find time I have sent her letter so hopefully if she has a piece of paper in front of her she will do something. This standing my ground isnt coming easy to me.

Have been reading your thread. Keep on plugging away at 'them' - you are doing this for your son & he deserves to get the help he needs. My niece is autistic & my sister had to keep on going to get her statemented etc. I can remember her telling me how many forms she had to fill in! But it did work out for her & my niece in the end. When in main stream infant & junior school my niece had a special needs helper for so many hours. Now she is 14 & at a great special needs school - exactly the one my sister hoped & prayed she would be able to attend. So, it is a hard slog but very much worth it in the end to find out what causes your son's problems & get him some extra help (apart from all the help & love that you give him). Wishing you well.