General Chat

Hang in there,Dizzi,and DON'T GIVE UP!!!

Get someone to help you if you have to,but stick to your guns.You need to be heard. xx

Do a bit each day if it's too hard to do at once Gwen, or type it out as best you can and get someone to help you set it out properly later on.

If you want to save something important and keep losing it, send it in an email to yourself, and you can take if from there.

I think it is necessary for everyone who has a complaint to do so and follow it up otherwise things will never be put right. I wonder if a lot of the 'callousness' or uncaring attitudes come from nurses being taught in universities now instead of learning from the bottom up actually on the wards? Perhaps they are too busy with the technicalities and such to remember that compassion is necessary too.


Take care and hope you feel better by the day

Love
Lizxx

Keep going Dizz - we're all routing for you,bless ya heart <3

JUST SPENT TWO HOURS TYPING NOTES FOR HOSPITAL
COMPLAINTS,
THEN HAVE TO DO CAPS ON AN OFF,THEN COMMAS AN
DOTS,
IT'S ALL I CAN DO
EXCEPT FIND THE BUGGER,I SAVED IN MY DOCS.
BUT CAN NEVER FIND DOCS AFTER I SAVE THEM,
YOU KNOW ALL THIS MAKES ME FEEL QUITE QUEEZY

BC I completely agree with you, my Mum went through the same procedures regarding PALS and such when the treatment my Nan was given was disgraceful. Everyone has a voice and if one voice is heard then the message eventually has to get through. Staying quiet about such treatment is not helping the patients that go through the same........

Dizzi, I hope you do follow it through because it is very important and as a patient, YOU should be very important.

Today I found out that the long letter I had sent to my Hospital (a large London Hospital), giving my observations, good and bad, about my treatment over the last three years...had been copied by my Oncology Nurse and sent to every Head of Department mentioned, and also to PALS, and feedback had arrived thick and fast. I am so glad I was annoyed enough to write that letter! It will give you a little bit of control back, Dizzi, and you will be doing other patients a favour.

Ann that is so so true

we must all be vigilant in such circumstances - many vulnerable patients will have no one to speak for them

I can only express my disgust at this treatment,it seems to be prevelent in the NHS nowadays. The way Sasha was treated whilst in hospital having three operations(One because of Neglect) and all being possible death. Made my blood Boil and I made sure they knew about it in no uncertain way.I was Later told by the Surgeon ( Who was exceptional)that the trouble was there were too many Agency Nurses which meant no continuity with patients. You carry on with your complaint as thats the only way things will (Or Should) Improve. Take care. **M**.xx.

Good on you for complaining,Dizzi-how dare that nurse make you feel that you're being a nuisance just for asking for help,when you needed it.
You can only take people as you find them,and she seems to be a bully to me.Please DO take your complaint further,and follow it through,as Liz says.Stand up for yourself- if her conduct is investigated it might stop her doing the same thing to the next poor victim under her care.

I hope that you're feeling better,take care.

Best wishes,

Margot xx

Glad you stood your ground Gwen, if you will excuse the phrase and hope you will find the strength and energy to take this complaint further. Sometimes people let things go as they are too tired, distressed or busy to continue a complaint but things must be made clear to this 'nurse' that PD patients especially need a certain kind of help and that all patients should be treated with respect and kindness, not fobbed off with rules and regulations or an offhand remark. I wonder if she would like her own mother to be treated in such a way?

It's great that you are home again and I hope things will go better for you so you don't have to go back in hospital.

Take care, treat yourself kindly

love
Lizxx

Ann <3

Dizzi, you've had a horrible experience in hospital, but I'm glad you've lost so much fluid and I hope, now you are home, that you feel a bit better and will continue to do so and don't have to return, which is what you dread and who can blame you.

I remember, when I was in hospital last April, lying in bed feeling groggy, in pain and vulnerable, hardly able to move after a major op. I was told a few hours after coming round that I must get up and start moving asap. Fair enough, but when you have 2 drains coming out of your body going into plastic canisters in what was similar to a large milkman's crate and a morphine drip hitched up to a post in another part of your body, it ain't easy getting out of bed and carrying that lot in each hand to go to the loo! I asked for help, as you did, to lift myself up, so I could move my legs over the side of the bed, and was told to wait a few minutes. No-one came and eventually in desperation I spoke to a very pleasant Asian (auxiliary I think) male nurse, who came to my aid and then brought me a long cord, which he tied to the bars at the end of my bed, so I could pull myself up. I always used that for the rest of my 10-day stay and didn't have to 'bother' anyone when I needed a lift to get out of bed.

I look back on it as a surreal experience - one I do not wish to go through again :-(

Good for you for complaining :-)

I complained about the poor treatment my lovely Dad received at a local hospital up until the time he died - I went for it big time which ended up in a big enquiry and the ward Sister, the main focus of my complaint was reprimanded

the treatment my husband received on the day he died - eleven years ago tonight actually - was superb and I thanked everyone concerned by letter - they did everything they could for him and for me

DIANE
WONDERFUL

I complained about Nursing care once because I was so disgusted it riled me. I couldn't find someone to grumble at so I walked in a side room where chocolates were being shared and there was a general party atmosphere amongst staff whilst my frail old sister in law was under a sheet soiled with unmentionable that was THREE days old, and when the room went quiet because of this upset person who was in their midst I stated my case and then walked out in tears. I cried because it was so against my character to speak up. The next day she (Sis in law) was clean, but the atmosphere was frosty, BUT it was worth it. :-P

HI ANN
I'M REALLY A BIG COWARD AND THE LAST TIME I DIDN'T FOLLOW IT THROUGH,

Ann

i didnt mean anything when i asked Dizzi if she had trouble last time with a nurse,i was just wandering if she complained last time and what the out come was.

nurses are allowed to help patients slide their legs over the bed,and can with help,help the patient stand up.
the nurse saying that she couldnt use the hoist at night because it made a noise is utter rubbish and anyone whos spent a night on a hospital ward will know they are not quiet places,so Dizzi was right to complain.

as for the hospital discharging you because you complained,i really dont think they would do that, its more likely that the medication for your swelling(diuretics) have done the job.get well soon.

:-D

I must admit that, the way you say it happened in last post, Dizzi, my 96 year old mother in law would have helped you without thinking for a moment it would put her back out.

It sounds like it was just a case of you asking for a bit of help, like you would ask anybody aged 5 to 100, big or small, to assist. I am sure you will be told she obeyed the elf and safety rules, and hospital thanks you for your concern but intend to take no further action. Whether she followed the conman sense rules (which is an implied term of her contract) I rather doubt. :-( :-(

Well done. Don't let it go, Gwen.

Dizzy, you can well do without the VERY upsetting way you were treated in hospital, because you have enough on your plate as i is. I admire the courage needed to complain about that nurse, knowiing you may be at her mercy for a few days longer, and her 'freinds' knowing that you made a complaint. I too, have had some downright 'nasties' in the past, but, being a coward, I didn't complain. You are not only doing this for yourself, but probably a lot of other patients like me, who dare not open their mouths. Wish I had had your courage back then, it would have saved a lot of agro for me, but a lot of others.
Hope you are feeling a lot better by now?
Keep as well as possible.
Eileen xx