General Chat

how awful for you Dizzi

nurses are not allowed to lift patients incase they damage their backs,and i think most people understand that,but she could have used a hoist or a bedpan,

we are allowed to help with another nurse or healthcare,but not lift.

some nurses think its below them to help with toileting and leave it to the health carer to do.

didnt you have trouble with a nurse the last time you were in hos?
:-(

get well soon :-)

Gwen, try not to be scared, you did the right thing by complaining and I hope you will be supported by your family to get the right treatment and care you need. If they won't speak up for you and you get more poor treatment tell 'em you will get the gr posse round to sort them out, that should get some action.

Seriously love, it's a great idea of BK to note all the things happening and then you will have no problem referring back to your notes if things have to be taken further.

Hope life is easier for you soon, and that miserable nurse gets the karma she deserves

love and hugs

Lizxx

Morning I was discharged from hospital yesterday evening ,still saying its a minor heart condition ,after intravenus duretics I lost a stone in fluid over four days, still not happy with results can't keep this up every couple of months .

As for the nurse I found her full Italian name I complained to another senior nurse and when I got home emailed my complaint,
Wondered if they classed me asa trouble maker and that's why' I got discharged at that time of day,

Hi Dizzi
Pleased to hear that you are home. You do need to take it easy though so let OH play the role of the butler. :-D
Good for you on standing your ground & making that complaint, as that nurse should not be allowed to get away with this kind of thing; it gives other good nurses a bad name. It’s is not good for patients like you’re good self or our NHS. That nurse was very unprofessional towards you. If I recall correctly, something was said about you staying in hospital for at least week when it was supposed to 33 days, & it has turned out to be 4 days, something not sounding good about that all. Maybe somebody on the boards can better advice you on this than I can, or you can seek better advice from the C.A.B. who can put you in touch with people who can help you the best way for you.

Dizzi if you are on good terms with your doctor you could ask him/her for advice about whether you should have been in longer for treatment.

Suzanne I think the reason Dizzi has 'trouble' as you put it with nurses is because some of them have no idea of the problems that people with PD have. Maybe too with so many non UK nurses there is a language and culture problem which doesn't help communication and understanding. This does not excuse the lack of basic care and compassion.

find out the email of the local Community Health Council - I'm sure they would be very interested to her your story

So glad you're home and have shed so much fluid

pleased your home and take care

our hospital chucks out any time day or night 2or3 in the morning if they need the bed

sally w <3

I DID ASK THE NURSE IF SHE HAD ANY KNOWLEDGE OF PD
SHE SAID NO,WHEN I TRIED TO EXPLAIN WHAT WAS WRONG
AT THE TIME BUT SHE REFUSED TO LISTEN,I FIND LAYING IN
THE SAME POTION FOR ABOUT AN HOUR GIVE ME BAD PAIN IN MY BACK ,NECK, AND HIP,
HER RESPONSE TO NEEDING A COMMODE DURING THE NIGHT WAS TO FIT ME WITH A CATHATURE WHICH I SAID NO WAY, NOT JUST TO HELP THEM ,THE HOIST YES THEY HAD ONE BUT SAID IT MADE TO MUCH NOISE TO USE AT NIGHT,
I LOST A STONE + FROM THURSDAY EVENING TO SUNDAY EVENING QUITE A LOT OF WEIGHT TO MOVE ABOUT,,
IN WASN'T EXPECTING THEM TO ACCUALY LIFT ME,ITS THAT I NEED HELP TO MOVE MY LEGS TO THE SIDE OF THE BED TO THEN SLIDE OFF.
ANYWAY SINCE THE FIRST EMAIL I SENT I HAVE HAD A REPLY ASKING IF I WANT TO TAKE IT FURTHER ,,,I SAID YES PLEASE

Well done dizzi, if nothing else you can raise awareness of the ignorance of some nurses about an illness suffered by a lot of people.

Dizzy, you can well do without the VERY upsetting way you were treated in hospital, because you have enough on your plate as i is. I admire the courage needed to complain about that nurse, knowiing you may be at her mercy for a few days longer, and her 'freinds' knowing that you made a complaint. I too, have had some downright 'nasties' in the past, but, being a coward, I didn't complain. You are not only doing this for yourself, but probably a lot of other patients like me, who dare not open their mouths. Wish I had had your courage back then, it would have saved a lot of agro for me, but a lot of others.
Hope you are feeling a lot better by now?
Keep as well as possible.
Eileen xx

Well done. Don't let it go, Gwen.

I must admit that, the way you say it happened in last post, Dizzi, my 96 year old mother in law would have helped you without thinking for a moment it would put her back out.

It sounds like it was just a case of you asking for a bit of help, like you would ask anybody aged 5 to 100, big or small, to assist. I am sure you will be told she obeyed the elf and safety rules, and hospital thanks you for your concern but intend to take no further action. Whether she followed the conman sense rules (which is an implied term of her contract) I rather doubt. :-( :-(

Ann

i didnt mean anything when i asked Dizzi if she had trouble last time with a nurse,i was just wandering if she complained last time and what the out come was.

nurses are allowed to help patients slide their legs over the bed,and can with help,help the patient stand up.
the nurse saying that she couldnt use the hoist at night because it made a noise is utter rubbish and anyone whos spent a night on a hospital ward will know they are not quiet places,so Dizzi was right to complain.

as for the hospital discharging you because you complained,i really dont think they would do that, its more likely that the medication for your swelling(diuretics) have done the job.get well soon.

:-D

HI ANN
I'M REALLY A BIG COWARD AND THE LAST TIME I DIDN'T FOLLOW IT THROUGH,

I complained about Nursing care once because I was so disgusted it riled me. I couldn't find someone to grumble at so I walked in a side room where chocolates were being shared and there was a general party atmosphere amongst staff whilst my frail old sister in law was under a sheet soiled with unmentionable that was THREE days old, and when the room went quiet because of this upset person who was in their midst I stated my case and then walked out in tears. I cried because it was so against my character to speak up. The next day she (Sis in law) was clean, but the atmosphere was frosty, BUT it was worth it. :-P

DIANE
WONDERFUL

I complained about the poor treatment my lovely Dad received at a local hospital up until the time he died - I went for it big time which ended up in a big enquiry and the ward Sister, the main focus of my complaint was reprimanded

the treatment my husband received on the day he died - eleven years ago tonight actually - was superb and I thanked everyone concerned by letter - they did everything they could for him and for me

Ann <3

Dizzi, you've had a horrible experience in hospital, but I'm glad you've lost so much fluid and I hope, now you are home, that you feel a bit better and will continue to do so and don't have to return, which is what you dread and who can blame you.

I remember, when I was in hospital last April, lying in bed feeling groggy, in pain and vulnerable, hardly able to move after a major op. I was told a few hours after coming round that I must get up and start moving asap. Fair enough, but when you have 2 drains coming out of your body going into plastic canisters in what was similar to a large milkman's crate and a morphine drip hitched up to a post in another part of your body, it ain't easy getting out of bed and carrying that lot in each hand to go to the loo! I asked for help, as you did, to lift myself up, so I could move my legs over the side of the bed, and was told to wait a few minutes. No-one came and eventually in desperation I spoke to a very pleasant Asian (auxiliary I think) male nurse, who came to my aid and then brought me a long cord, which he tied to the bars at the end of my bed, so I could pull myself up. I always used that for the rest of my 10-day stay and didn't have to 'bother' anyone when I needed a lift to get out of bed.

I look back on it as a surreal experience - one I do not wish to go through again :-(

Good for you for complaining :-)

Glad you stood your ground Gwen, if you will excuse the phrase and hope you will find the strength and energy to take this complaint further. Sometimes people let things go as they are too tired, distressed or busy to continue a complaint but things must be made clear to this 'nurse' that PD patients especially need a certain kind of help and that all patients should be treated with respect and kindness, not fobbed off with rules and regulations or an offhand remark. I wonder if she would like her own mother to be treated in such a way?

It's great that you are home again and I hope things will go better for you so you don't have to go back in hospital.

Take care, treat yourself kindly

love
Lizxx