General Chat

How worrying and frustrating for you Lynne, I would have been extremely vocal about my annoyance, I am afraid. That treatment isn't acceptable, when you were told the doctor was there.

Glad Simon is ok now, and hope things go more smoothly for you, at least for a while.

Lizxx

Oh what a morning I ve had.

Simon woke me up at 5am this morning with an asthma attack.
First thing give him his ventolin syrup (cant use a inhalour)
Wait to see if this works, nope.
Saturday Doctors shut so I cant get him on their nebulizer.
Ok down to the Cottage Hospital nearest main Hospital half an hour away.
They put him on the nebulizer within 10 minutes his breathing is normal he wont have any OBS done never has, so the nurse says he needs to see the Doctor to check him over but there isnt one here he needs to go to the other Cottage Hospital where there is a Doctor on call.
So 20 minutes later we arrive they have been informed to expect us.
One and a half hours later I started to get worried as Simon hadnt eaten and hes diabetic, I went and explained to the receptionest that we couldnt wait any longer as I didnt know what his sugar levels were doing he needed something to eat, I said that I knew his breathing was fine, and I would bring him back if anything changed.

The receptionest said he was sorry for the delay and he didnt know why the DOCTOR HADNT ARRIVED YET sorry I had to shout it as I didnt know he wasnt even in the building aaaaaaaaaarrrrrrrrrrrhhhhhhhh.

Right rant over Simons fine and thats the main thing.
Tenby is a lovley place to live and bring up children but you must never be ill LOL.

Lynne x

I am so glad you had a good night out, even if your knee(s) suffering now Lynne. Let's hope you have more good times like that so you can let your hair down a bit.

You all have my admiration wholeheartedly.

Lizxx

Happy13th Birthday to Sharons daughter today.

Had a great night last night, I am chairman of the local Gateway Club.
It was our last night before we broke up for our summer break, so we had a summer ball it was in Tenby Rugby Club, we had a disco and a buffet which the rugby club kindly donated. I think we danced for the 3 hours (well my knee is telling me that today). Tenby is a great place to live as local buisness and the likes of the Rotary Club, the Lions, Round Table and many more all support us and give donations.

Hope everyone is well today.

From a shattered Lynne x

Hi Claire
Yes she knows that birthdays mean presents cards and cake lol She knows that she will be 13 and that it is her special day ! She has academically reached the age of 4/5, she also has Autisim and challenging behaviour and lots of sensory intergration needs. She is the same hight as me but bigger built and twice as strong, but I wouldnt change her for the world, but I wish I could change the world for her Her disabilities are a part of her and without them she would not be the girl she is today.

Alison try not to worry about the puperty bit, I know its different for girls but our DD is managing quite well so far. I also dreaded the transistion to upper school but with plaenty of planning and pictures she coped really well. She attend a SLD school which also takes children with complexed needs. Time goes so fast at the last meeting at her school they were telling me that next year we will have to look at what options she will take !!!!!

Claire have you looked at crelling harnesses ? We had to get a harness from them when DD kept taking her seat belf off, she got banned from school transport for weeks in the end I found a suitable harness and contacting the council as the Ot was useless.

Claire,

I hope you get things sorted out with the wheelchair etc.

My boy is 12, so now we are looking at high schools. He has been in a mainstream school that has has a Special Ed Unit, but we think we will send him to our local Special School. He has Intellectual Impairment. The school says he is Autistic, but the Paediatrician is unsure, although she says he has a lot of autistic characteristics. All in all, he's not too bad. I really worry as he gets older with the puberty thing and inappropriate behaviour. Scary.

Claire, your son having a difficult time because of routine change, reminded me of when my boy first started school. He used to get so upset at school holiday time and I thought it was because he loved school. He used to cry and said he was going to unlock the gates and doors of the school and go to school. I finally figured out he was upset because his routine had changed and he felt he SHOULD be at school. He's got used to it all now. But, now and then, something different will happen and he'll get upset. If he knows beforehand, of a change to routine, he's usually ok.

Al

We had a very peacefull night last night which I am so greatfull for and am now feeling refreshed this morning : ) Mind you I think it because the 'birthday bunny is comming tonight' !!! My DD will be a teenager tommorow

Lynn I hope you had a good evening

Pat Iam sure you will get so much out of your new job

Shirly you daughter is a special lady

Claire Thankyou for sharing that poem

Love to you all xx

Claire thats a lovley poem.

I ve been to Holland but now I m trying to get over the Swiss Alps to get to Italy but I know that they are to tall and big for me I will never kiss the ground of Italy.

Shirley your stepgrandson sounds just like my son at that age I never wrapped him up in cotton wool its a cruel world out there. I to add acne rosacea in my early forties but with treatment it cleared but not overnight it took a while, I had it all over my cheeks. I m fifty now and my skin is all clear of it.

I hope everyone has a good day and look forward to reading more posts.

Lynne x

Thank you Huia we think she is one special girl!! especially as the mum wont let go and has changed solicitors several times and told lies every time to harass them , She HATES my daughter with a vengeance cos she married her hubby even though daughter wasnt on the scene when they broke up.
Our daughter is a worrier anyway and the stress that the mum causes through solicitors who believe very word she tells them, isnt good for our daughter ,
When the mum cant get what she wants she changes solicters and spins her poor me tales,
Daughter has now been diagnosed with Acne Rosacea on her nose and was told its stress related,
Sometimes you unkindly think that the person causing all the stress could just get their comeuppance!!

Claire, you are so right about things being worse when you are tired.

Shirley, your daughter is a real heroine, deserves a gold medal. Best wishes to her.

Huia.

Hi Lynne
we have a special needs step grandson.He is the son of my daughters OH by a previous relationship. They only married 5 years ago and the lad used to stay with dad every weekend unless the mum was having a paddy with dad and used the lad as a weapon. She was under the social services anyway as they weren't happy with how she was with the boy. To cut a long story short Daughter & SIL went to court and got residency and he has been with them now for nearly five years. He has recently finally been diagnosed with a faulty gene (cant remember which one) but it has caused global learning delay He has autistic tendencies like needs structure,doesnt like people to turn up unless he knows they are coming.hates loud noises ,lines his toys up in a row etc.He has limited speech, still poos himself so has to wear nappy pants etc, goes to a special needs school where must say there are kiddies with more special needs than him .He can be a handful especially after spending Sat/Sun with his mum who lets him do what ever likes and gives in to his tantrums, BUT he can be a really loving lad who likes cuddles and absolutely adores my daughters latest grandaughter who is now 9 months old ,He is so gentle with her and gets all concerned if she gets a bit cross,

Lad is now 9 and has just started to get more speech and putting small sentences together, he is a stocky boy but his mum has been seen pushing him around in a push chair!! she seems to want to keep him as a baby which was one of the social services concerns for his overall development. Daughter & SIL say they want him to reach his full potential whatever that is & hopefully to be able to take care of himself & not to be taken advantage of when they are no longer around .
Our daughter is fifty and a grandmother 4 times over & went through chemo four years ago for six months for Hodgkin's ,plus she works full time so I think she is a heroine for taking on the care of lad
Shirley

Hello again Lynne,
Yes I am enjoying spening time with Nick, today I took a pad and pen in and we played Noughts and Crosses, he enjoyed it so I said I would make a Noughts and crosses game to take in tomorrow, a square of card and some flourescent squares of paper with O and X then laminated and away we go.
Last friday I was asked if I would go to the zoo with them so over the weekend I made a pairs game with pictures of matching animals from clipart which I again laminated so they will last, I took it in on monday and it was a great success with lots of the other kids in the playgroud wanting to play, which is again great for Nick, and on Tuesday we went to the zoo and I was exhausted when we got back, I never realised that rounding up and counting children could be so hard.
I think I get more out of our time together than Nick does.
Pat.

If you can think of anymore games / things that you think he might like I would be grateful
Forgot to say he liked the pairs game so much he took it home, I will have to make a new one. lol

Hi,

"Welcome to Holland" by Emily Perl Kingsley.

This is a poem that was written for parents of Autistic children but I think that it is suitable for others that have special needs.
Sue

Hi Pat

I hope you enjoy your new job it can be very rewarding.

A game my son liked when he was small and he still does is connect 4 it is also good for their hand and eye co-ordination.

I m glad you enjoyed Tenby the sun is shinning here at the moment.

Lynne x

Hello Lynne,
I have just started a new job looking after a little boy with special needs over lunch time at the primary where my grandchildren go.
He is a lovely boy but he has to wear leg braces to enable him to walk and he has trouble communicating
I am only into my second week but I know how determined and difficult he can be and how drained I feel when he is like that, and that is only after an hour, so I really admire anyone that does it full time.
I find it best to go in knowing exactly what we are going to do, so I have made a pairs game which we played the other day and today it was noughts and crosses, I spend ages thinking up what we can do and then have to make it,. but I do enjoy seeing him all excited when he beats me.

Hope you are having a good day.

We love Tenby and have camped there, last time when we had all that rain summber before last, Tents and Rain Ugh

Pat

Hope you do not mind me telling you my story

Afternoon all hope you are all well, thank you for all putting your posts on here and Sharon yes I think its a good idea to keep it going.

I love Wednesdays as he goes out with his carer straight from day centre and comes home at 7pm no demanding until then but it could be a good evening it depends what sort of mood he will be in.

Lynne x

Hi
Just thought I would pop i and see how everyone is today may be it would be nice to keep this thread going for a while, a place to pop in when having an off day, knowing that we al undestand.

Love to you all
Sharon x

Lynne, I dont know what was said on Chat, I rarely go there, usually just stick with My Threads and only occasionally look at others. The people who upset you have obviously never had to walk in your shoes - as yet. As I said, my children didnt have any problems, but now my husband has alzheimers I am learning what it is like to be a carer. It certainly has lots of downs but occasional ups. Have a look at the Carers thread, you can always 'let it all out' on there. I have found it great to tell other people of my problems and to read of theirs and find I am not the only one in the world with these problems. I will probably continue to pop in here now I have started.

Best of luck to you.

Huia.

I am fine thank you Claire I was on a bit of a downer that night it doesnt happen that often but the few on chat upset me that night but I will never post on there I will stick to general topics board.

Lynne x