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Dementia is such a s**t disease
| Profile | Posted by | Options | Post Date |
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Ginny | Report | 26 Sep 2005 23:12 |
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In all honesty Bella I don't think that Corrie will be able to tell me anything that I don't already know and I really think that it will be too painful to watch - I only hope that they have done their research. When Tracy Barlow had her kidney transplant I was working with a transplant team and the way that they handled it was appalling. There is no way that Samir's kidney would have been the right tissue type, there is no scar, there was no mention of the transplant during her pregnancy, she drinks like a fish.....need I go on ? so please excuse my scepticism! |
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The Bag | Report | 26 Sep 2005 23:28 |
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Ginny - i too hope that corrie has done its homework. my mum is in the relatively early stages - but already what was my mum has gone and been replaced with someone that looks like her , but doesn't act or think like her. We are in the process of moving - so that we can accomodate her if dad goes first - and return some of the loving care she gave to me. it is very very hard though, especially when they are hurtful - and its one of the woman-that-looks-like-my-mums talents at the moment! it sounds a dreadful thing to say, but Mum has gone already. i hope in my heart of hearts that the woman that is now in her skin doesn't live to very old age - there said it...and its made me cry.sorry jess |
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Ginny | Report | 26 Sep 2005 23:31 |
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Know exactly what you mean Jess - the lady that for years I thought that I would never manage without now sits there and I want it to end - I'm blubbing too now. |
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♫Jilly McMad♫ | Report | 26 Sep 2005 23:34 |
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Ginny...how tragic for you and for your mum......I would agree thta it is a sh*te disease.......my grandpa got confused at best of times as he had such a big family and was always getting us mixed up with each other but he got there in the end........once dementia set in he had no chance and it was heartbreaking to watch and be part of....my heart goes out to you hun..... stay happy at the thought that you both knew exactly what you meant to each other before this crippling disease took over...... love to all... Jill x |
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*~*~ Maisie from Wales. *~*~ | Report | 26 Sep 2005 23:39 |
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Hello Ginny, I too have a precious Mum who is in a Home with Dementia, I nursed her for as long as I could until she was a high risk and I also go to see her every day. It is a dreadful disease and it breaks my heart to see my lovely caring Mum who now is in a totally different world to us and nothing could ever prepare me for what Mum has become. Last week she told me that I was Winnie and she has no idea who I am. It's so bloody cruel and so much worse for us family looking on. Please God that my kids never ever have to go through what I have had to- watching my Mum become a completely different person. The roles of Mum and daughter have reversed I am now her Mum and she often calls me Mum when I walk into the lounge where she is. That is so heart breaking listening to her calling Mum Mum to me. Take care Ginny xxx |
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The Bag | Report | 26 Sep 2005 23:41 |
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(((hug))) just for Ginny - and I am not a huggy person! Jess xx |
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Carolyn | Report | 26 Sep 2005 23:49 |
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Ginny, I'm really sorry to hear about your mum. My mum has been getting very forgetful lately, short term that is, she can still remember quite detailed events from her childhood. She has been diagnosed with Mild Cognitive Impairement. The consultant said it was definitely not Alzheimers but when my dad asked where he could find out more about MCI was told to look on the Alzheimers Website, so that has worried us a bit. Do you mind me asking how long it is since your mum first started losing her memory? Carolyn |
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Annie | Report | 26 Sep 2005 23:55 |
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hi ginny really feel for you just lost fil last week he suffered with dementia ...... he knew my name and 1 of daughters but dont know if he knew what relation he was to us he seemed quite happy in nursing home but didnt know it was a home imm just glad that we dont know whats round the corner ann xx |
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LindaMcD | Report | 27 Sep 2005 14:18 |
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I too have first hand experience (my husband is in the early to mid stages) and I have found 'Talking Point' on the Alzheimer's society website a wonderful help, there is so much help and support on the forum do try it. Love Linda x |
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Natalia | Report | 27 Sep 2005 14:21 |
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So sorry to hear this..... I can only imagine the pain you are feeling. My heart goes out to you. Natalia xx |
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fraserbooks | Report | 27 Sep 2005 14:41 |
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I am a nurse in a nursing home and a couple of our residents are in the early stages. The sad thing is it changes from day to day. One day they sound perfectly o.k. and the next they acuse you of hiding their newspaper or forget to get dressed or something. A cruel disease. |
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AnninGlos | Report | 27 Sep 2005 15:05 |
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ginnie, How very sad for you, I am so sorry. Your consolation must be that she is not suffering because she doesn't know. I do pray that you are given the strength to bear the pain this causes you. Carolyn My Dad died when he was 93, for the last 5 years of his life he was very forgetful, his short term memory was almost non existent, but he always knew us and nver developed Dementia. Ann glos |
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Researching: |
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WhackyJackieInOz | Report | 27 Sep 2005 15:11 |
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Hi Ginny So sorry to hear about your Mum. At least you have all those precious memories of her in your heart. Kindest regards Jackie |
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ButtercupFields | Report | 27 Sep 2005 15:12 |
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Big Hug for you Ginny. Everything has been said....XX BC |
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Joan of Arc(hives) | Report | 27 Sep 2005 17:16 |
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Hi Ginny I like many others on here have also had/am having first hand experience of this awful illness. My Dad no longer knows who I am, or any of his family is. He doesn't even understand that my mum, his wife of over 60 years has passed away. The only thing I can say to you is, for them it is like seeing us & thinking they have seen us somewhere before, but can't remember where. It's not that they stop loving us, it's just they can't place the face with the familiarity. It's like when we walk down the street & think 'I've seen you somewhere, but I can't remember where!' You must never forget that the love they have for us is always, & will forever still be there, it's just they can't express it anymore. ((((((Big hug)))))) for Ginny & all you others sharing this sad experience with us. Joan xxxxxx |
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Fiona aka Ruby | Report | 27 Sep 2005 17:21 |
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I'm so sorry, Ginny.(((((((take care))))))) Fionaxxx |
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Val | Report | 27 Sep 2005 17:22 |
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My mum has senile dementia also and it does hurt when they don't remember you visiting them. My mum still lives at home with my brother but the time will come when he won't be able to cope as the dementia she has bursts the blood vessels in the brain, my grandad died of it so did a couple of my aunts |
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Ginny | Report | 27 Sep 2005 17:41 |
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I would just like to say how utterly overwhelmed by both the messages that I have received on this board and privately. I am not one for airing my personal angsts as a rule but was talking to a member privately last night and they sugested that I posted somrthing on the boards and I am glad that I did. It has obviously struck a chord with many people on here and I send best wishes to you all. for those reading this who have never experienced a situation like this I hope that you never will and I hope that it will put things into perspective for others. Thankyou again xxxx |
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Val | Report | 27 Sep 2005 19:26 |
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If you ever want to talk we will listien |
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R.B. | Report | 27 Sep 2005 19:33 |
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Ginny, So very sorry to hear about yor Mum,my Mum had Dementia for the best part of 20 years and it broke my heart when all she could say was ' I don`t know you or who are you', my thoughts are with you. (((((((((((((((((HUG))))))))))))))))))))))) R.B.xxx |
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