General Chat

Since there's nothing more positive I can do from where I live, I would just like to keep giving this thread a nudge to make sure as many people as possible can see and react. Take care all. Margaret

Once again thanking you for your support. Some of your stories are heartrending! I am going to try and keep this on the first pages until the end of next week so as many as possible can send e mails. I have done some through the Alzheimer's site for friends it is so easy with the template and I had their permission to include their names and addresses. Love and thanks to you all. Linda x

Linda, I will send a message to my MP although last time he sent it on to Minister of Health who wrote back to say NICE were reviewing it. As if I didn't know that!!! My mum has dementia, she is getting worse, her score is slipping but not bad enough to change drugs, She is on Arricept and there is another drug for more severe dementia. I shall fight tooth and nail to keep her on drugs. It is a terrible illness and I am so very sorry about your husband . Sorry I cannot be at the meeting. Good luck and love Chris

Hi Linda Have sent an e-mail to my MP I now also subscribe to the Alzheimer's Society. Best of luck for your rally in Cardiff Love to you and Vic Bren

Thank you to those that have sent personal messages I really appreciate it. Linda x

Linda, I will send a e-mail to my M.P. would love to be in Cardiff, but unfortunatly I can'nt. Good luck and best wishes to you and your husband. Jean.

nudge

Thank you all for your support and Maisie it will be lovely to meet up with you in Cardiff. The more we can do to make our voice heard the better. There is now a template on the Alzheimer's website to e mail your MP so it is very easy to do. I attend a forum every few months and it is heartbreaking to see the number of young people with this devastating illness and by young I mean in their 40's! Linda x

I'm with you on this one Linda, my dad died suffering with severe dementia 5 years ago and now my mum is in the initial stages of it. Bev x

You have my full support Linda. Will email mine asap. ((((((((hugs))))))))) for you & hubby I know how devastating an illness this is. Joan xxxxxxxx

As a family we suffered Linda, we watched my poor Grandad with 'The Long Good-Bye' for 15 years. I too will write to my MP. Donna

This is dreadful Linda. My Mum has got severe Alzheimers. Have sent you a pm. Love Maisie

nudged before it topples over the edge ...

Linda, will do; one of my darling Nans died having suffered this cruel disease for four years. x

Linda, This is terrible I will email my MP. Love to you and Vic, see you soon. June xx

Sorry I took a bit of time there Linda.... had a visitor. Done it now, and it is off to my MP.. Deanna X

It is our MP's we need to put pressure on as NICE have made their final decision. Can you imagine the uproar if this were cancer drugs they were withdrawing! Thank you for your support. Linda x

I will email NICE and complain as my mum has dementia and my grandfather, aunt both had it when they died

just sent email to my mp malcolm wicks.

Hi Linda, I'll do my bit. Love to you and Vic, and hope we can meet up again one day x Elaine ;-)