General Chat

Just leaving now (6.30am) for the journey to Cardiff no mean feat getting my husband up and out everything takes so long to do!! Will let you know how it went.... and watch the news although most of you won't get Wales TV so you will be able to tell me how the London protest went. LInda Finally had a response from my MP says his computer keeps crashing!!!!!!!!!!!

Good luck Linda, Wave your banners. Hope there is lots of support. I will be with you in spirit. Chris xx.

If MPs are bombarded by e mails, surely they will throw their weight against this awful proposal. Another plea from me for you all to e mail yours. It is so easy if you use the Alzheimers site. I had no idea how bad this awful affliction could be until my mother became a sufferer. Someone I worked with once said to me 'Oh my mother keeps her brain alive with all her interests' It doesn't work like that. My mother had plenty of interests and was studying Ancient Egypt and French shortly before this all struck. No one is immune. PLease help. Just a quick e mail. Your MPs name will come up on the Alzheimers site and the message will be sent from there Chris xx

PLEASE PLEASE PLEASE e mail your MP's about this dreadful decision to ban the drugs to sufferers of this disease in it's first stages..... None of us know what's ahead of them and I never envisaged that my Mum would end up like she is... Thanks a lot everyone Maisie

Only just found this thread. Have also e-mailed my MP. These people can not be allowed to get away with such a peverse decision. The drugs were not available for my mother but if they can help stave off even for a short time some of the suffering this disease brings they are worth every penny of the cost.

nudge...

Another plea to all of you to e mail your MP. Lets show the Government/NICE that we won't stand for this penny pinching policy which will leave many dementia sufferers slipping into an abyss when they could be stabilised and lead a better quality life for years longer. Chris

Hi Maisie, Here's another nudge from me. Margaret

Nudging

I have emailed my MP. My husbands Uncle is suffering with this. Gill

Here's another nudge from me. Take care of yourselves too all you carers. Margaret

Nudging for all those sufferers and carers

Linda I will definately be meeting up with you in Cardiff Bay. If my lovely Mum hadn't had these tablets then I would not have been able to look after her at Home for nearly 3and a half years, she is now in a Home doesn't know me and it is so distressing ---- that person is not my Mum and would not want to be in this agitated and sometimes aggressive state.. she was such a gentle caring intelligent Lady and she is reduced to the state she is now. I cannot go on anymore as I can't see the screen for the tears. Maisie

Since there's nothing more positive I can do from where I live, I would just like to keep giving this thread another nudge to make sure as many people as possible can see and react. Take care all. Margaret

Have sent an e.mail to my MP hope my little bit helps Sorry i cant come to Cardiff I do hope you manage to change there minds. Maureen

Have e.mailed MP Linda... Anne :)))

Hello Linda, I too am outraged at this. None of my family have suffered from this illness. I do feel that if there is something available to help the people who suffer from Dementia, why can't they have access to it through the NHS. I have e-mailed my local MP Sir Robert Smith using the template supplied. As Woody says we never know what is in front of us. Raven

Thank you for the PM's and to those that are meeting me at Cardiff. Linda x

I have also emailed MP using the template - and it was so easy to do. We don't know what's round the corner for us or if we ourselves may one day need help. How dreadful it will be if that help is not available. Christine

I have e mailed my MP using the Alzheimers society template. PLEASE if you are thinking of doing the same-it is easy. There is a ready made mesage that you can add your own experience to if you wish or just leave it as it is. You put your name and address, when you add your postcode your MPs name comes up and all you do is click 'send 'and off it goes to the MP. No trying to compose a letter or look up your mps contact details. Please do it and encourage your friends and family to I am convinced that if these drugs are withdrawn the sufferers will deteriorate more quickly and need nursing and this will cost the NHS more in the long run so are they insane to try to withdraw these drugs. My mum is on aricept at present but may need the drug for more advanced Alzheimers soon (Ebixa) as she is getting worse. If they withdraw this she will have no hope. Chris