General Chat

Linda, I will send a e-mail to my M.P. would love to be in Cardiff, but unfortunatly I can'nt. Good luck and best wishes to you and your husband. Jean.

Thank you to those that have sent personal messages I really appreciate it. Linda x

Hi Linda Have sent an e-mail to my MP I now also subscribe to the Alzheimer's Society. Best of luck for your rally in Cardiff Love to you and Vic Bren

Linda, I will send a message to my MP although last time he sent it on to Minister of Health who wrote back to say NICE were reviewing it. As if I didn't know that!!! My mum has dementia, she is getting worse, her score is slipping but not bad enough to change drugs, She is on Arricept and there is another drug for more severe dementia. I shall fight tooth and nail to keep her on drugs. It is a terrible illness and I am so very sorry about your husband . Sorry I cannot be at the meeting. Good luck and love Chris

Once again thanking you for your support. Some of your stories are heartrending! I am going to try and keep this on the first pages until the end of next week so as many as possible can send e mails. I have done some through the Alzheimer's site for friends it is so easy with the template and I had their permission to include their names and addresses. Love and thanks to you all. Linda x

Since there's nothing more positive I can do from where I live, I would just like to keep giving this thread a nudge to make sure as many people as possible can see and react. Take care all. Margaret

I have e mailed my MP using the Alzheimers society template. PLEASE if you are thinking of doing the same-it is easy. There is a ready made mesage that you can add your own experience to if you wish or just leave it as it is. You put your name and address, when you add your postcode your MPs name comes up and all you do is click 'send 'and off it goes to the MP. No trying to compose a letter or look up your mps contact details. Please do it and encourage your friends and family to I am convinced that if these drugs are withdrawn the sufferers will deteriorate more quickly and need nursing and this will cost the NHS more in the long run so are they insane to try to withdraw these drugs. My mum is on aricept at present but may need the drug for more advanced Alzheimers soon (Ebixa) as she is getting worse. If they withdraw this she will have no hope. Chris

I have also emailed MP using the template - and it was so easy to do. We don't know what's round the corner for us or if we ourselves may one day need help. How dreadful it will be if that help is not available. Christine

Thank you for the PM's and to those that are meeting me at Cardiff. Linda x

Hello Linda, I too am outraged at this. None of my family have suffered from this illness. I do feel that if there is something available to help the people who suffer from Dementia, why can't they have access to it through the NHS. I have e-mailed my local MP Sir Robert Smith using the template supplied. As Woody says we never know what is in front of us. Raven

Have e.mailed MP Linda... Anne :)))

Have sent an e.mail to my MP hope my little bit helps Sorry i cant come to Cardiff I do hope you manage to change there minds. Maureen

Since there's nothing more positive I can do from where I live, I would just like to keep giving this thread another nudge to make sure as many people as possible can see and react. Take care all. Margaret

Linda I will definately be meeting up with you in Cardiff Bay. If my lovely Mum hadn't had these tablets then I would not have been able to look after her at Home for nearly 3and a half years, she is now in a Home doesn't know me and it is so distressing ---- that person is not my Mum and would not want to be in this agitated and sometimes aggressive state.. she was such a gentle caring intelligent Lady and she is reduced to the state she is now. I cannot go on anymore as I can't see the screen for the tears. Maisie

Nudging for all those sufferers and carers

Here's another nudge from me. Take care of yourselves too all you carers. Margaret

I have emailed my MP. My husbands Uncle is suffering with this. Gill

Nudging

Hi Maisie, Here's another nudge from me. Margaret

Another plea to all of you to e mail your MP. Lets show the Government/NICE that we won't stand for this penny pinching policy which will leave many dementia sufferers slipping into an abyss when they could be stabilised and lead a better quality life for years longer. Chris