General Chat

Hi Maxine

Although tired and exhausted, I can tell what a loving mum you are. Leaving you a hug sweetie,

((((((((((((((((((((((((((((((((((((hug)))))))))))))))))))))))))))))))))))

Take care

xxx Shimmer xxx

HI Maxine
I am so sorry you are feeling down at the moment but I do symathize with you.
I go onto the Dementia Link as I have a brother with Dementia and it is hard for me to deal with.
I find telling complete strangers how I feel that I myself feel a lot better for getting it off my chest.
Family are great but sometimes it's nice to talk to people who know about these things and I find it helps me enormously.
I do hope you get some help with your son. I can't give you any advise but I do send all my best wishes to you.
Yes a good cry also helps

Kind regards
Jackie

Maxine we have a thread on General, (Depression and anxiety), people on there are
very understanding, and some would be able to empathise with you. Please join us any time you need to share your anger, loneliness, pride, worries etc x

off to get some much needed shut eye,nite nite ,xxx :);0 to all,xx maxine

yeah totally get that :))

I'm off to bed
take care huni
speak soon
catherine
xx

thanks catherine, a character he certainly is!! i still cant believe this has happened its taught me to take nothing for granted,its funny though because even though sometimes i could walk away and keep walking,i never would,and i would never change him,its what makes him him,if you know what i mean? x

cynthia ,michael is on the autistic spectrum,were not sure whether its aspergers or not yet but the behaviour is the hardest part for me,more awareness is needed you are so right!

You're quite right Maxine, there isn't enough known about some syndromes - my daughter has Asperger's - but it sounds like you're doing a grand job in very difficult circumstances. Well done.

he sounds like a real character maxine :))

he obviously has a loving mum

catherine
xx

michaels now 4,he spent the first 2 years in and out of guys hospital and my local hospital,hes still under st thomases,and kings and my local hospital,hes nearly 4 ft tall,im 5,3!!!,he weighs 4 stone and has size 13 feet,he is in 7-8 age tracksuit bottoms and is extremely strong!!! he could nt hold his very large head up until 5 months and even then this would exhaust him, but with the love and support of the physios at the hospitals he gained upper body strength,he wore heavy pedro boots to support his floppy ankles and now.... he walks,plays etc,his speech is getting their with speech therapy,yes,hes aggressive and i wont be able to handle him for much longer but i keep telling myself,maxine look how far hes come,we never thought he would you see,he has very challenging behaviour but i know hes worth it even if i dont always feel that way when im having a bad day with him,he has many fears and phobias that make every day difficult but at some point in the day at least once he makes me smile,and i want to share that if thats ok with you guys,theres not enough awareness about alot of syndromes and i feel thats a huge shame because it would help people realise what these people have to go through in their every day lives,understanding is everything! i had to keep it short,i could write a book on it i bet!!!! thanks everyone,maxine

sent you a pm hun
hope your doing ok?
catherine
xx

when i was pregnant with my son i was constantly ill with chest infections,teeth problems,abscesses on my teeth etc,i got shingles as i was so run down and ive never felt so tired as i did with this pregnancy,i just knew it was differant from my 4 other pregnancies,at my first dating scan they took me and my partner aside and said they wanted to measure the fluid at the back of the neck,i agreed thinking nothing of it,all the nurses went quiet and the doctor said we are sorry to tell you your baby has a 1 in 19 chance of being downs syndrome,no nice warm up just gave it to us straight,i just rememer crying hysterically,my partner bless him didnt know how to help me at that point,we were told we were going to kings college hospital the next day and i was offered a cvs procedure but with a chance of immediate miscarriage,of course we said we would go,but then they said they could offer us a termination that day,i was so angry and heartbroken,we obviously declined and we went to kings the next day to cut it short i had the procedure,very painful and scary but necessary,god was watching us as my baby survivd this procedure and the rest of a bad pregnancy with us terrified of the birth and how our little boy would be like.he didnt have downs,but something i never knew even knew existed

good evening all,and thankyou for all your lovely mail and support,todays been a tough one but im ok,my little ones asleep,he has an awful bad cold and is hopefully sleeping some of it off! i hope everyones well and doing fine,i thought id share my story about my son with you all as youve all been kind enough to show kindness and an interest my way,if anyone wants me not to tell the tale please let me know,but i just feel it might help someone else as youve all helped me so my next post will start at the beginning ,here goes!

Maxine, didyou think you were put on this earth to be a punch bag for someone? I bet not!
I'me really pleased you've taken Catherines advise, I was in your shoes once, But 12 years ago I decided eneough was enough. I got out! and havent looked back since!!
All the very best.
xxxxxxxx

Hello Maxine,

Im glad our lovely Catherine has helped you, I will pm you later,

Take care , will read whole thread later,

Caz xxxxxxxxx

so glad to hear I could help maxine :))

you know where I am if you ever need an ear

have a good weekend speak soon
c
xx

Well done Maxine trouble shared and all that
take care
Jenxx

Oh Maxine

That's wonderful hun, support groups are marvelous aren't they.

Wishing you such a lovely weekend too.

Take care

xxx Shimmer xxx

an update to let you all know ive joined 2 really good support groups that catherine gave me and they seem really friendly and knowledgeble on my sons condition so thats a real help,i feel relieved and more positive,ive decided to ask for help when i need it,instead of thinking i can conquer the world by myself! thanks for all your kind support ,have a lovely weekend everyone,signing off now ,just wanted to update you all and say thanks! maxine

Just seen this Maxine, sleep well and hope you feel better and stronger in the morning.

Night love

Barbara xx